English conference proceeding

Koopman, H.M., Kamphuis, R.P., Verrips, G.H., Vogels, A.G.C., Theunissen, N.C.M., Verloove-Vanhorick, S.P.& Wit, J.M. (1997).  Health related quality of life of children with juvenile chronic arthritis.  4th Annual Conference of the International Society for Quality of Life Research (ISOQOL), Vienna, Austria, 4-9 November, Quality of Life Research, 6(7/8),

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The concept of health-related quality of life (QoL) is defined as childrens' affective evaluation of different aspects of their daily functioning. Few attempts have been made to develop reliable health-related QoL assessment instruments for children with a chronic disease. In order to meet this need, the DUCATQOL, a generic 32-item self-report questionnaire, was constructed. The items cover four domains: physical, emotional, social and school functioning. Data were collected from different groups of children with a chronic disease. In this study 50 children with juvenile chronic arthritis (JCA) (mean age 10.5 years, SD 4.5 years, 68% pauciarticular) receiving clinical care in the Leiden University Medical Centre completed the questionnaire. The DUCATQOL proved to be understandable, internally consistent (a = 0.91) and reproducible (r = 0.90). The four eightitem subscales showed homogeneity (a ranging from 0.68 to 0.77). In comparison with the reference group of 1,092 healthy peers, children with JCA reported significantly lower scores on the physical (F = 13.19 and p < 0.001) and emotional scale (F = 5.62 and p = 0.02). Girls evaluated their physical condition lower than boys (F = 5.79 and p = 0.01). Early onset of JCA (before age 5 years) resulted in a lower score on the social scale (F = 5.78 and p = 0.02). Disease type (pauciarticular or polyarticular) did not influence the subjective evaluation of health-related QoL. It can be stated that children with JCA reported a lower health-related QoL on different domains of their daily functioning.


Arthritis, Assessment, Child Health, Children, Chronic Disease, Evaluation, Health, Instrument, Juvenile Chronic Arthritis, Health Related Quality of Life

picture of N.C.M. Theunissen

Last updated on 12 February, 2015.